Friday, December 21, 2012

Day 29 was a mixture of pleasure and pain, but overall I'm happy how it turned out. The past week side effects have been mostly absent again. Some sniffles and sneezing, but it always goes away in an hour or so.
Nothing else.

And that's the pleasure part. Doc N is both pleased and surprised by my progress so far with Gemcitabine. He asked me three times about stomach pain, as though he couldn't believe I hadn't had any. The bad news was I was stuck in a wheelchair made for a pre-schooler when what I need is one with a wide load sign.. A couple hours in that and my normal jovial demeanor was heading for the exit fast. Also stumbled several times transferring from and to the wheelchair, but luckily had managed to position my fanny at least part way above the seat when the knees gave out.

The good news?  A misinterpretation on my part of Doc N's initial description of the chemo drugs and their side effects. If all goes well with the next three weeks, I will start 5-FU or whatever along with daily radiation. The first good news is that those drips are weekly, not daily. The second is that between the two chemicals, 5-FU is not the one with more pronounced side effects. It turns out the Gemcitabine has more pronounced side effects. So this is likely close to as bad as it gets for me. Unless of course those baddies go viral and we have to get radical.  Should get first clue about that in three weeks, as they want to do a scan to check for new malignancies before doing the radiation. Fingers and eyes crossed about that.

Time to drag my achin self to bed. Best to you all. And best wishes for a peaceful pain free holiday.

Oh. It appears that one of the local VA Social Workers has pulled a rabbit out of the hat and convinced the low-income transportation service from the next county north to take me to daily radiation treatment for two months. I hope this does work, as that would be a very large pile to taxi fares. Thank you, young man.

Wednesday, December 12, 2012

Day 21 - My juice-free day. I am curious to see what will happen with side effects, etc. after missing the regular weekly chemo drip this week. I was supposed to go in for blood work, but they allowed my Home Health Nurse to come wake me at half past the crack of dawn to stick me at home.  I am grateful to avoid the two hour round trip, the time getting ready, the shaky transfer to and from the driver's car, and the wheelchair trip up and down my Super Ramp Of Death.  Instead, I took Bud for a long romp in Larry IV. Cold and bracing but nice.

This week have been fighting sniffles and coughs and chills. Mostly they pass quickly but today they're sticking around a while. Add to that some difficulty getting to sleep and some hard to shake blues and you have the possible side effects for the week.  Mostly get around them ok. For the blues I took Bud out to the woods to find a nice dead branch that we made into a Christmas Tree.  Got the new boob tube configured and watched my first home 3-D movie last night. The Avengers, a pretty good flick and a little fun in 3-D with great visual effects anyway. Have done some cleaning in preparation for a visit from a bestest friend Christmas week.  And stayed in touch with some friends and acquaintances via social networks and telephone. Those little moves can take a pretty big chunk out of the time the blues have to do their dirty work on me.

Read a NY Times article about aspirin, including a line about a clinical trial that shows it to have remarkable effect in preventing adenocarcinoma. Like the one that was in my pancreas. Too little, too late. But may be good to pass along to those who aren't here yet.

http://www.nytimes.com/2012/12/12/opinion/the-2000-year-old-wonder-drug.html?adxnnl=1&smid=fb-share&adxnnlx=1355339522-Lmxk0bQGoo958jCWGABcEA

With that, I shall continue my adventure with sniffles and Bud. Today we steam clean carpets from the wheelchair. This should be fun.

Thursday, December 6, 2012

Day 18. Another largely uneventful few days.  These little side effect bouts are a little annoying at worst. Thought I'd add today because we changed the treatment schedule and wanted to see if  delaying today's treatment four days had some kind of effect. I believe it did. But not much. I'm getting the sense that the chemo dosage is carefully planned to last the duration of the time between treatments. I know the mind has an awful lot to do with this as well, at least in my history it does. Originally supposed to get treatment #3 on Day 14.  I'm sure that I felt the side effect sniffles and cough clear up more and more Monday through Wednesday.  Sure enough, my body seemed to have little or no chemical left today, and my blood work seemed to suggest that was true, with the white cell count climbing back above average into it's usual spot.  So today I began with sniffles and chills even before the treatment was finished. That should last a few more hours at most. (Sure enough. They've disappeared even before I've finished this.) Next week is my "week off" so I'll be off the juice for about 14 days. Still must go for blood work, but no time in the snack chair.

For some reason, today as Brenda opened the IV line, I could "feel" that juice running off to kill some bad cells. Now, I know it could not work that fast, but the thought was more than b.s. as I've experienced such images a number of times as or just before they came about. We'll see.

The Treatment Room nurses are a breed apart. With four nurses covering up to 28 patients with each at a different place in their treatment sequence, these ladies never ever stop running.  Literally.  Always a smile and a gentle word or laugh for us, no matter what they're grappling with.  And they have the eyes of a hawk and are about as fast on the move. Today, Brenda asked me how the anti-nausea med was working at home and I told her the only nausea bouts were unexpected and brought on by coughing. About ten minutes later I sneezed and she jumped from the station across the room to see if I was going to cough and need the bag. Nope, just smiled instead. I think if we scratch our nose in there, we will have a nurse on it checking for side effects.

Thank you all.